Paige's oncologist called on Tuesday, and said, "We have some sudden news..." Her spinal fluid biopsy of last week came back clear. And the bone marrow biopsy didn't look like regular cancer cells, so they sent it off to Boston to take a look, and Boston checked it out and weren't certain what the cells were, and told Dartmouth to start testing Paige in preparation for transplant.
And the week before they had given us a packet of information on how to discuss death with your kids. (And a most dreadful book on where you go after you die, filled with nebulous descriptions and cosmic illustrations. I gave it back to them, and said, "heaven is way cooler than that.")
So Paige and Ronda and I went up to the hospital today for lots of prep tests. Here was our itinerary:
8:30 meet with oncologist
9:00 Audiology test
10:00 Echocardiogram
10:30 sedation and bone marrow biopsy, etc
1:00 pulmonary testing
2:30 opthomology testing
wrap-up meeting with oncologist
Two tests results came back from last week today. The cytogenetics test was clear, and the spinal fluid biopsy was clear. Unbelievable. So next is a MRI on Monday, and then off to Boston with the kids on Tuesday for a myriad of other tests. And then admittance to Dana Farber on Friday.
And our isolation begins today. No visitors, no visiting other homes, no crowded places. No Francesca. :( She's my wonderful cat. I am actually looking for someone to adopt her for one year. If you want a quirky, loyal, highstrung gorgeous longhaired cat, and have no other pets that would stress her out, send me an e-mail (kerri-beth@juno.com) . She follows me everywhere, and I'm really going to miss her. And Paige is going to miss "Checkiss" as she calls her.
Paige's hair fell out again.
So your prayers are being answered!! Pray that the tests will continue to come back good, and that Luke and Paige will stay healthy between now and Friday.
7 comments:
WOW. Oh my word...I am SO thankful to hear this news. Big hugs to you all...
OH GOODNESS...(as miss Paige would say)! What good news to hear! I knew if there was a miracle to be had it was going to be for Paige! Kerri--i have no clue how to explain the cryogenics part; but am so happy that things are going well! I will be working in Boston on Friday and would love to see you guys if you are here! Sending all my love and prayers.
Sarah
Good.
Oh, my. PTL. Continued prayers and lots of hugs to you all. We love you all.
Oh, you guys! That is so incredibly cool. God is so awesome. Love and faith to you all.... and oh yes, LOTS of HOPE! Ali Sandford
Great news!!! I've worked in Hematology and other areas of the lab for 30 yrs now and it's unbelievable how the technology for
diagnosing hematalogical disorders
has advanced. Dana Farber is a great institution-the best!!What type of Leukemia does she have?
I haven't worked with pediatric hematology patients in 25 yrs, just
Veterans.
Cells that have undergone treatments can look so bizarre.
Its often dificult to tell
Lymphoblasts from Myelo-Monoblasts
etc. Thank God for Cytogenetics and
flow cytometry for diagnosis. The DHMC labs offer cutting edge technology. We're so lucky to have
them in our community. The VA also
benefits from their services on a daily basis.
Jim became very upset to read the news a couple of weeks ago so he hasn't looked again lately. We're on vacation now and I'll tell him the
great news when he comes home from
the camp today. Good luck to you
all!!! WE're always hoping for the
best!
Anne & Jim H.
This is FANTASTIC.....no...no...FANTABulous....no..no. SUPER Fanterrifabulous....man..that doesn't seem to touch it either...any rate it is unbelievabley good...so good we need to invent a word for it...
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