Tuesday

Paige's ANC jumped WAY up to over 1000 all at once, so she was able to come home! We have had a fun couple of days. Luke is treating her with more kindness, which makes me very happy.

Today Ronda took Paige to see the Reed's chickens, and to play on Timmy and Peter's swingset, sans Timmy and Peter, much to their disappointment. I'm still worried about germs, since the hope of transplant is so close. She went to the big town playground the other day, which she hasn't done since October. She was a little tentative, but I think she'll warm up to it with exposure.

One of my favorite activities in the world these days is to sit or lie snuggled up next to her. It's delicious.

Today she was playing the guitar and singing the ABC's when she caught her pic line endcap on one of the guitar strings, which broke it off her pic tubing. So the visiting nurse had to come and remove the entire line. She has to have it replaced during surgery either tomorrow or Friday.

Paige's doc said that last week's MRI looked good, and it sounded like she couldn't see the "sugar coating" of AML cells that the previous MRI showed. So that is progress!

Tomorrow she has another radiation simulation on her brain, intrathecal chemo, a biopsy of spinal fluid, and possibly her pic line replaced. Pray that it goes well, and that the chemo, as my dad prays, "does good and not harm."