Today Paigey said something that we couldn't understand. After she repeated it a few times, we figured out that she was saying "want better" so I asked her if she wished she felt better, and she said yes. I forget that she must feel awful. Because her knee pain is under control, I don't think as much about general systemic feeling-yuckyness.
She has a couple good hours each day mixed in with all the hours of sleeping/zoning out. I got to hold her for a long time last night sitting in a chair. She held her arms up to me and said, "I wanna get up." which she never says. Three times in the last 2 weeks she has said "Wanna go playroom" but never that she just wanted to be held. I held her, and she promptly went to sleep and slept for an hour straight. I have some real sweet memories of last night and today to hold onto.
15 comments:
I have been thinking a lot lately that it is too bad that when we want to hold Paige the most we can't, so I'm really glad that you got the chance to do that.
Kerri,
I just heard about Paige and the web site. I will be praying for Paige and your family. I have been thinking about you lately and will continue to keep you and your family in prayer.
Kerri, I have thought of you so often lately, but had know idea what you have been going through. I do not even know if you realize that I moved away. Kim called from First Baptist and told me about Paige. I am praying for you and your family. Remember Jesus is your strength in weakness and weariness. Patty
Paige is beautiful like you Kerri.
Still praying. Much Love and Many Hugs
The V Post family
{{{hugs}}} Still praying and loving you....the beans
(from Elizabeth: Hi Paige and Luke. I pray for you. love, Elizabeth)
Love you, Kerri! So glad you're getting to hold her like that.
After I read this post, I was thinking about not being able to help Paige, and in my mind, I looked up at Jesus, and said, "Won't You help her?"
And then I saw that He was standing there holding her.
It helped a little, just to see.
Kerri-
I'm glad you were able to have some special time with Paigey. I'm am thinking of you guys constantly and praying. I'm so happy I was able to spend some good time with Paige too; it means so much to me. Call me if you need ANYTHING. Give everyone hugs for me and Paigey a kiss. All my love and prayers.
Sarah
Dear Kerri,
That's wonderful that you have some very sweet memories. God bless you and the family. You are in our thoughts and prayers continually.
Love, Pam Jones
Thank you for sharing your precious memories and feelings with all of, Kerri. They are so precious indeed.
Paige and your family remain #2 on our prayer list every day and night, second only to Grandma Jackson.
Kerri,
I am so glad you had that wonderful time holding Paige. I am praying for you all.
Love,
Nurse Carrie
kerri,I have a 2 year old daughter beautiful like Paige.The Pain you feel must make you sick.If the Lord wanted to take my daughter I know I would want to go with her.You probably don't feel strong,but you are.You all,and Paige in her 2 or 3 years have touched more peoples lives then most people have in a life time.Gods will is being done for you and your Family,and we are all praying for the needs you mentioned.What a wonderful mom and person you are.Please post any more needs that you and your family my have,what ever they my be.Much Love to you all.
glad for the good things Kerri, and praying for many more.
Love you
Kerri, Thank you for your updates. Have been praying earnestly for Paige and it helps to have feedback to know how to pray. I pray for God's comfort (physical as well as spiritual), peace, health and blessing for all of you. In His love...
I had to make a trip to Pediatrics yyesterday, and saw Ben in the hallway talking with some folks...
I said to the Lord, please be with him and his family during this very rough time as I know that I have been through the same as I have lost a child.
And then I felt a nice breeze in the hall, and a calm come over me. No matter what happens, God will be with you every step of the way, and will be holding Paige's hand too.
You are in my thoughts and prayers.
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