We are camped out at the hospital, in a nice big room. Paige is still in quite a bit of pain from her right knee. Her pain medication dose keeps being increased, a number of times each day, even, but it still doesn't seem to be enough. Mostly she lies in her bed (on a big air mattress on top of a regular hospital bed) watches movies, and picks who she wants to cuddle with.
Yesterday she amazed us all by declaring that she wanted to go to the play room. I carried her there, and we sat in a chair for 15 minutes, while she clutched her princess lunchbox (which contains all her treasures, and is very heavy- but she refused to be parted from it). Then she wanted to go to the gift store downstairs, so Cote (her cousin) pushed her very heavy IV pole and I pushed Paige in her stroller. While we were in the store, she said she wanted to go home, which made me cry.
Paige also seems to get really anxious sometimes. I think her nerves must be shot from being in pain, and from this new lifestyle of being in the hospital stuck in a bed. It's a relief every time she asserts herself and is more Paige-like - like when some of us were standing around her bed talking, and she was trying to watch "crehbulls" (the Incredibles) and I guess we were bugging her, because she kept calling out, "no talking!"
I am sometimes heartsick, sometimes ok, and sometimes stressed out. Pray that our time here will be sweet for all of us, and painfree for Paige. And please pray that she won't be so anxious.
She gets platelets every 8 hours, and her risk of bleeding right now is actually quite reduced. The cancer on her spinal column could still do bad things quite suddenly. Anemia might be how she eventually leaves us, which I have heard is quite gentle and peaceful.
God, are you sure you don't want to do a miracle after all?
11 comments:
I'm so glad I have been able to spend sometime with Paige and the rest of the family lately! I'm thinking of you guys and you are in my prayers! Lots of love and hugs!
Sarah
P.S. Lip gloss and nail polish are some of my best possesions too :)
Thanks for taking time to pass on an update for all of us in prayer for each of you!
As for miracles...oh my dear child, He's doing miracles in our hearts every minute of every day that we each Trust Him that He knows best...His will is being done through this all....none of us understand the Why's, but We each Trust Him...His ways are best, for Paige, for her family, for all of those who are standing with you in prayer....His gift of faith is a HUGE miracle gift to us all...maybe not the miracle we think is the right one for this time in our lives...but We're ALL trusting Him, every minute of every day through this time of suffering and heartake! So, "Keep your eyes upon Jesus, look full in His Wonderful Face, and the things of earth will grow strangly dim, in the Light of His Glory and Grace!
Because He lives, we can face tomorrow, because He lives, ALL fear is GONE, because WE KNOW, HE HOLDS THE FUTURE, That life is worth the living... Just...Because...HE LIVES!
Continuing in Prayer, Sylvia and Doug
I can only say I am in awe of your family and your faith. I follow your story each and every day. I do not know how you as the parents feel now, but I want you to know that hundreds of people are thinking of you and your daughter each and every day. God's infinate mercy on all of you I pray.
We are thinking of you and praying for you and sweet little Paige. You guys are amazing and we wish we could be there with you. Give Paigie a hug from us and tell Lukie that Alan says Hi too.
Praying for special peace for Paige. And sending bundles of love and hugs to you all.
Ellie Pass
Thank you for the up date. Still praying for Paige and the whole family. MUCH LOVE and LOTS of HUGS
The V Post family
Thanks for this update. Our family continues in prayer for little Paige and for your whole family.
John, Brenda, and family
Phil and Bev in Nova Scotia continue to have you in our prayers. Thank you for taking the time & energy to keep us updated. It means a lot to us all.
As CK used to say, "Courage to you."
We love you & our hearts travel the distance each day.
May the Lord continue to give you His peace & faith & comfort.
Phil
Thank you for being so brave and such a strong example in this trial...I've been so blessed by what you've shared and then, by others' comments as well. I feel Jesus' presence in this whole experience and am grateful to be a part of it. We will continue to pray as you've requested, for peace for all of you and less pain for Paige.
When I was reading Sylvia's message, it reminded me of something I just read from a book called "A Miracle A Day". Sometimes the miracles come differently than what we've been hoping for. "Scripture talks about life as a "valley of tears", and so it often is. But it is in the midst of tears and darkness that faith develops. Wherever and whenever miracles don't happen, we have an opportunity to allow faith to take root in our souls and it is precisely this faith that has the power to work the deepest miracle of all, the one that happens quietly inside our own hearts."
{{{HUGS}}}Love to you each from the Beans
This is from The Magician's Nephew, where Digory is talking to Aslan:
"'But please, please - won't you - can't you give me something that will cure Mother?'
Up till then he had been looking at the Lion's great feet and the huge claws on them; now, in his despair, he looked up at its face. What he saw surprised him as much as anything in his whole life. For the tawny face was bent down near his own and (wonder of wonders) great shining tears stood in the Lion's eyes. They were such big, bright tears compared with Digory's own that for a moment he felt as if the Lion must really be sorrier about his Mother than he was himself.
'My son, my son,' said Aslan. 'I know. Grief is great. Only you and I in this world know that yet. Let us be good to one another.'"
[Later on in the story]
"He was very sad, and he wasn't even sure all the time that he had done the right thing; but whenever he remembered the shining tears in Aslan's eyes he became sure."
Lisa, I like that you wrote that, very much.
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